Living with FOP: Ian, Kathleen and Hassan talk to Clive Friedman

Three personal narratives that address difficulties with diagnosis and finding specialists, the importance of prevention and awareness, and day-to-day life living with an ultra-rare disease.   

Watch Clive Friedman talk to Hassan, Ian and Kathleen as they share their experiences of living with FOP and what they think clinicians can do to improve care.

Living with FOP: Hassan

Living with FOP: Ian

Living with FOP: Kathleen

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