Collaborating with FOP patients and their families

Published: 10 June 2022

Roberto Pignolo talks to Trisha and her son Lincoln who has FOP. They discuss the challenges they faced getting a diagnosis; how, as a family unit, they have achieved a balance between protection and freedom for Lincoln; and what healthcare professionals can learn from patients and their parents or caregivers.

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Question 3	Dibello D, Di Carlo V, Colin G, et al. Ital J Pediatr 2020;46(1):78. Copyright © 2020, The Author(s). CC-BY 3.0.
Question 4	Pignolo RJ, Shore EM, Kaplan FS. Orphanet J Rare Dis 2011;6:80. Copyright © 2011. CC BY 2.0. Kitterman JA, Kantanie S, Rocke, Kaplan FS. Pediatrics 20\05;116:e654–e661.
Question 5	Image reproduces with permission from Gore AI, Spencer JP. Am Fam Physician 2004;69(4):865–72. © Copyright 2004. Published by American Academy of Family Physicians. Kitterman JA, Kantanie S, Rocke, Kaplan FS. Pediatrics 2005;116:e654–e661.
Question 6	Image reproduces with permission from Sun Y, Xia W, Jiang Y, et al. Calcif Tissue Int 2009;84(5):361–5. © Copyright 2009. Published by Springer Nature Switzerland AG.
Question 7	Image reproduces with permission from Kumagai K, Motomura K, Egashira M, et al. Skeletal Radiol 2008;37:563–567. © Copyright 2008. Published by Springer Nature Switzerland AG.
Question 8	Image reproduces with permission from Rashid U, Bari A, Maqsood A, et al. J Coll Physicians Surg Pak 2016;26(2):154–5. © Copyright 2016. Published by Journal of the College of Physicians & Surgeons Pakistan
Question 9	Image reproduces with permission from Butterworth ML, Marcoux JT. Juvenile Hallux Abductovalgus. In: Butterworth M., Marcoux J. (eds) The Pediatric Foot and Ankle. Springer, Cham, 2020. © Copyright 2020. Published by Springer Nature Switzerland AG.
Question 10	Image reproduces with permission from Kaplan FS, Xu M, Seemann P, et al. Hum Mutat 2009;30(3):379–90. © Copyright 2009. Published by John Wiley and Sons.

Collaborating with FOP patients and their families

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