Access groups and organizations aiming to raise awareness and educate on FOP. 

Global specialist centers

Find a center that specializes in the care of FOP.

Submit a case

Have you suspected or successfully diagnosed a case of FOP?

We invite you to share any experiences, whatever the outcome, to create an environment for peer-to-peer learning. Following faculty review, if appropriate, your case will be posted online.

Step 1 of 7

Patient's age at presentation