Women’s health and FOP
Roberto Pignolo and Mona Al Mukaddam discuss the most common women’s health issues they are presented with by their FOP patients. They cover menstrual abnormalities, contraception, feminine hygiene, and the considerations for pregnancy and delivery for women with FOP.
Collaborating with FOP patients and their families
Roberto Pignolo talks to Trisha and her son Lincoln who has FOP. They discuss the challenges they faced getting a diagnosis; how, as a family unit, they have achieved a balance between protection and freedom for Lincoln; and what healthcare professionals can learn from patients and their parents or caregivers.
Living with FOP: Ian, Kathleen and Hassan talk to Clive Friedman
Three personal narratives that address difficulties with diagnosis and finding specialists, the importance of prevention and awareness, and day-to-day life living with an ultra-rare disease.
Managing oral and dental health
Roberto Pignolo talks to Clive Friedman about the importance of preventive oral care, considerations for dental surgery and orthodontic treatment, and how the medical and dental professions can work together to ensure better dental care for people with FOP.