Collaborating with FOP patients and their families

Roberto Pignolo talks to Trisha and her son Lincoln who has FOP. They discuss the challenges they faced getting a diagnosis; how, as a family unit, they have achieved a balance between protection and freedom for Lincoln; and what healthcare professionals can learn from patients and their parents or caregivers.

Managing oral and dental health

Roberto Pignolo talks to Clive Friedman about the importance of preventive oral care, considerations for dental surgery and orthodontic treatment, and how the medical and dental professions can work together to ensure better dental care for people with FOP.

Social impact of COVID-19 pandemic felt among people with FOP

Since the start of the COVID-19 pandemic, individuals with fibrodysplasia ossificans progressiva (FOP) have reported decreased satisfaction with their social activities, declining mental health, and a reduction in dental visits, US research shows.

Senolytics may have a role to play in FOP treatment

Drugs that selectively induce apoptosis of senescent cells may be effective candidates for the treatment of fibrodysplasia ossificans progressiva (FOP) flare-ups via the inhibition of tissue reprogramming and subsequent prevention of endochondral heterotopic ossification (HO), preclinical study findings indicate.