Journey to FOP diagnosis

This tool will guide you through some simple steps on how to make an early diagnosis, highlighting common points at which misdiagnoses can be made.

Global study maps natural history of FOP

An international, 3-year study of people with fibrodysplasia ossificans progressive (FOP) has mapped the natural history of the disease and shown that the greatest levels of progression occur during childhood and early adulthood.

Women’s health and FOP

Roberto Pignolo and Mona Al Mukaddam discuss the most common women’s health issues they are presented with by their FOP patients. They cover menstrual abnormalities, contraception, feminine hygiene, and the considerations for pregnancy and delivery for women with FOP.

Collaborating with FOP patients and their families

Roberto Pignolo talks to Trisha and her son Lincoln who has FOP. They discuss the challenges they faced getting a diagnosis; how, as a family unit, they have achieved a balance between protection and freedom for Lincoln; and what healthcare professionals can learn from patients and their parents or caregivers.

Managing oral and dental health

Roberto Pignolo talks to Clive Friedman about the importance of preventive oral care, considerations for dental surgery and orthodontic treatment, and how the medical and dental professions can work together to ensure better dental care for people with FOP.