Management of FOP

FOP Clinical Pearls

Explore this interactive body simulation and discover how to manage the complexities associated with FOP and advice on how to avoid harm while managing the direct symptoms of the disease, such as flare-ups, to more routine medical and dental care that needs to be carefully planned and tailored to avoid causing harm.

Each pearl is taken from the evidence-based ICCFOP management guidelines, with contributions from several expert ICC members sharing their real-life experiences avoiding harm and ensuring patients get the best tailored care possible.

Video module

Clinical treatment of FOP

In this video module, Carmen de Cunto and Richard Keen explain the current best practices for managing patients with FOP. They discuss available treatment options, and highlight some emerging agents that are currently going through trials and have the potential to improve patients’ quality of life.