Discussions and insights
Video podcast series
Unique perspectives from experts and people living with FOP, including those caring for them.
Women’s health and FOP
Roberto Pignolo and Mona Al Mukaddam discuss the most common women’s health issues they are presented with by their FOP patients. They cover menstrual abnormalities, contraception, feminine hygiene, and the considerations for pregnancy and delivery for women with FOP.
Collaborating with FOP patients and their families
Roberto Pignolo talks to Trisha and her son Lincoln who has FOP. They discuss the challenges they faced getting a diagnosis; how, as a family unit, they have achieved a balance between protection and freedom for Lincoln; and what healthcare professionals can learn from patients and their parents or caregivers.
Living with FOP: Ian, Kathleen and Hassan talk to Clive Friedman
Three personal narratives that address difficulties with diagnosis and finding specialists, the importance of prevention and awareness, and day-to-day life living with an ultra-rare disease.
Managing oral and dental health
Roberto Pignolo talks to Clive Friedman about the importance of preventive oral care, considerations for dental surgery and orthodontic treatment, and how the medical and dental professions can work together to ensure better dental care for people with FOP.
Interactive webcast
Watch this case-based webcast covering important topics such as a new presentation of FOP, flare-up management, common complications, and considerations for vaccination and immunizations.
Robert Pignolo is joined by internationally renowned experts, Geneviève Baujat, Carmen De Cunto, Christiaan Scott, and Richard Keen.
This is a CME-accredited activity first broadcast on June 24, 2021. Each case and discussion are available as chapters, or you can watch the full video on-demand.
