FOP Clinical Pearls

Explore this interactive body simulation and discover how to manage the complexities associated with FOP and advice on how to avoid harm while managing the direct symptoms of the disease, such as flare-ups, to more routine medical and dental care that needs to be carefully planned and tailored to avoid causing harm.

Each pearl is taken from the evidence-based ICCFOP management guidelines, with contributions from several expert ICC members sharing their real-life experiences avoiding harm and ensuring patients get the best tailored care possible.

Journey to FOP diagnosis

This tool will guide you through some simple steps on how to make an early diagnosis, highlighting common points at which misdiagnoses can be made.